Friday, August 26, 2011

A Cure for Down Syndrome . . . a mothers thoughts.

Many people have asked me what I would do if there were a cure for Down Syndrome. It's been the topic of many discussions on various message boards for parents of children with DS, it's something I've thought about . . . a lot.

Let me not even get started on my feelings that perhaps DS is not something that should/can be cured or the moral and ethical debates that have been going around. Let me just concentrate on this mythical world in which there was a cure for DS, would I give it to Seth?

In one simple word - no. And this might be the most selfish blog post I write to date but the answer is no. Why? Why wouldn't I want to cure my child of this "affliction", this thing that affects him cognitively, developmentally, and physically??? What is so wrong with me that I wouldn't want the best for my child?? I'll tell you why. . . in all honestly and all coming straight from my heart.

Before I do that though, there is something you should all know about Down Syndrome. Down Syndrome is genetic. Okay, here it goes, I am going to give you all a biology lesson. Genetic does not, does NOT, equal hereditary. There is a difference. Something that is genetic affects your genes and it CAN be hereditary (hereditary meaning it is passed on from parent to child), but it also may not be hereditary. So Down Syndrome is genetic because it affects our chromosomes, our genetic material, as in someone with DS has 47 chromosomes, an extra chromosome number 21, but most cases of DS are NOT hereditary. There is a form of DS that is hereditary but it is very rare. So next time you go to ask someone who has a child with DS if DS runs in the family, just don't. Don't do it. It makes you look ignorant.

Okay so what does Down Syndrome being genetic have anything to do with me not willing to give Seth a cure. Well think about it. Think about it hard. Our genetics, all those bits and pieces of information written on our chromosomes, they make up who we are from our hair color to our characteristics, basically our physical and spiritual beings are determined by our chromosomes. By spiritual I'm more talking about our personalities. Our chromosomes hold everything we are and can be.

I love Seth. I love everything he is. I love his big blue eyes, his dirty blond hair, his sense of humor, his laugh, his nose, the lines across his palms, his toes, the sound of his voice, I mean I love this person so much. And I see so much of me and Drew in him, I do. So how would I know, how do I know how much of his personality or physical characteristics are determined by the one extra chromosome?? That one chromosome has the ability to hold so much genetic material. What does it affect? If Seth didn't have DS would he have the same smile? Would he have blue eyes? Would he be Seth?? I don't know. It's not something I ready and willing to give up.

I don't find it right to change who Seth inherently is just to "cure" DS. I don't think Down Syndrome can be cured for this very reason in fact. How are they (meaning scientists) possibly going to extricate all of the genetic material that causes the "negative" aspects of DS while still leaving the same human being with the same personality and physical appearance?? And even if they can do all of that, isn't part of life and our character made up of all the struggles that we go through? I mean Seth is who he is also because of his life experiences, all the hard work that he puts in to learn and grow.

I guess the real question is, would Seth be Seth without Down Syndrome? And the answer is no. It just is.

And once I realized all of this, that I wouldn't ever give up Seth if it meant changing who he inherently is, I realized that I have fully accepted him, DS and all. Because while I may say that Seth has DS, that's not entirely true. Seth doesn't just have DS, it is a part of him, it is part of him that makes him who he is. I can't deny that. And in trying to deny that I've been denying all of who he is. He's Seth and he is made up of all that genetic material on all those chromosomes, all 47 of them.

And there's a saying that I have always had. Down Syndrome means 47 pieces to love instead of 46, isn't more love better?

I'm in love with all 47 pieces of my son.

20 comments:

  1. I'll never forget sitting on my hospital bed crying after finding out Russell had Ds and my husbands family walking in and looking all shocked and saying "Well, it doesn't run in our family, does it in yours?" EFFF! Nice question and great timing to ask it!!! Idiots!
    So I have pondered this question myself...Would I take Ds from Russell if I could. I have always thought maybe yes, only because I thought it would take away all his struggles...After reading this I feel so differently. You have put things into perspective...In a way I never thought of before...That Russell doesn't HAVE Ds, but that it is actually a PART of him...Why would I want to take part of him away?
    I LOVED this post!!

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  2. I am Laura from Canada, And i want to thank Dr.Zabaza for the herbal medicine he gave me that cured my Down Syndrome within the period of 21 days. And since then i have never had any symtom of the disease. So i am clad to let the world know that there is one person that has the cure of Down Syndrome whose name is Dr.Zabaza and his contact details are: zabaza.logan@yahoo.com or give him a call on +2348182620374.

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  3. thank to Dr odudu for bring back my lover in just 48hours i thought i have lost it all but when i contacted Dr odudu on oduduspell@gmail.com every thing was restored back to me even when his mother hated me when i contacted dr odudu with my explanation to dr odudu my lover mother who said we can not marry change her mount after dr odudu cast a spell on me,now am happy today because we are finally married am doing all this due to my promise to Dr odudu that when my lover come back and we are married am going to tell the whole world about dr odudu and his great oracle that answer faster all appreciation goes to Dr odudu for bring back my happiness via oduduspell@gmail.com contact him for any kind of problem you may have dr odudu is recommended for any help via oduduspell@gmail.com or call +2348051913076
    felicity FROM U S A

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  4. am back and better
    I promised to tell the world about him that's why am posting this here...all thanks to Priest JAYEMA...there are so many fake spell casters out there I was more than scammed heartbroken and almost gave up all hope until I met with him...now am so happy...
    If you have issues mail jayemamagictemple@gmail.com...he sure would help you he casts all kind of spells

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  5. thank to Dr odudu i have being hearing of the great man people are away saying good of him on site on Facebook that his so powerful with a magic power when i contacted him on oduduspell@gmail. com he prove to me that it was real and great and perfect i never see this kind of power before in my life that work in just 48hours that way Dr ODUDU said it that is how it we happen and his power those not disappoint him, when my lover left me i don't no who to run to but with the help of Dr odudu am happy today and my lover is back successfully i want those that are having relationship problem should contact Dr odudu on oduduspell@gmail. com his the only man that work perfectly and if you want your life to full of smiles contact him now on his email address :ODUDUSPELL@GMAIL. COM OR CALL +2348051913076 Dr odudu is the only solution place were your heart desire can be granted the way you want it and it 100% sure and guarantee.
    LISA FROM CALIFONIA
    ODUDUSPELL@GMAIL.COM
    +2348051913076
    LISA

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  6. what is your problem in ligfe that you feel all is over am hear to tell that Dr odudu the great spell caster is still alives to restore all you have lost back to you such as money, relationship, lover,promotion of different kind protection spell good luck spell, youwant to get richer contact this email address ODUDUSPELL@GMAIL.COM or call +2348051913076 heis the anwser to all problem contact him now if you want your problem to be over for life because i am a living testimony with the help of Dr odudu contact him on ODUDUSPELL@GMAIL.COM OR CALL
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    EBONY FROM ITALY

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  7. am Sofia from London i want to tell the whole world about what Dr odudu did for me in just a period of two days.i have being dating this guy called wada we dated for over four years when i travel for business trips to another country before i came back i melt my boyfriend having affair with another girl when i ask why are you cheating on me he said is over between us it was like joking the way he sound,i never knew he was very serious about what he telling me i feel sad and disappointing with my man on a faithful night when i watching my television i heard about Dr odudu the great spell caster that he bring people lover back and restore all your lost glory back in just 48hours that is how i contacted him on ODUDUSPELL@GMAIL.COM OR CALL +2348051913076 as am speaking now my boyfriend is back to me and we are fully happy and married with one kids, am telling you my life story in case you are passing through a stress Dr odudu is there to help you out and restore your heart desire back to you in just 48hours contact him now on ODUDUSPELL@GMAIL.COM OR CALL +2348051913076
    SOFIA FROM LONDON

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  8. i just want to share my testimony here.. i was married for 12 years to my husband and all of a sudden, another woman came into the life of my husband.. he started hailing me and he was abusive..but i still loved him with all my heart and wanted him at all cost…then he filed for divorce..my whole life was turning apart and i didn't know what to do..he moved out of the house and abandoned me and my 3 kids.. so someone told me about trying spiritual means to get my husband back and introduced me to a spell caster called ashra so i decided to try it reluctantly..although i didn't believe in all those things… then when he cast the spell, after 3 days that he told me, my husband came back and was pleading..he had realized his mistakes..i just couldn't believe it.. anyways we are back together now and we are happy..in case anyone needs this man help, his email address ashraspellhome@yahoo.com his spells is for a better life

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  9. am Sofia from London i want to tell the whole world about what Dr odudu did for me in just a period of two days.i have being dating this guy called wada we dated for over four years when i travel for business trips to another country before i came back i melt my boyfriend having affair with another girl when i ask why are you cheating on me he said is over between us it was like joking the way he sound,i never knew he was very serious about what he telling me i feel sad and disappointing with my man on a faithful night when i watching my television i heard about Dr odudu the great spell caster that he bring people lover back and restore all your lost glory back in just 48hours that is how i contacted him on ODUDUSPELL@GMAIL.COM OR CALL +2348051913076 as am speaking now my boyfriend is back to me and we are fully happy and married with one kids, am telling you my life story in case you are passing through a stress Dr odudu is there to help you out and restore your heart desire back to you in just 48hours contact him now on ODUDUSPELL@GMAIL.COM OR CALL +2348051913076
    SOFIA FROM LONDON

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  10. hello people on this site i have amazing story for you in which Dr odudu has done in my life, i marry for over three years i was having a problem of my period because as a woman i have to get a month period so that i can get pregnant i found it difficult for over three year and i went all the hospital in my country doctor telling me all kind of story and statement that i should go and buy some tablet and drugs but it never work one day when i WAS BROWSING I SAW SOME TESTIMONY ABOUT DR ODUDU I contacted Dr ODUDU he cast a spell on me when it was time for me to get my period it was success and that same month i was pregnant in just nine months i give births to twins which is two boy i was so happy that i have finally put smile on my husband face that is how i get my baby after plenty laugh and insult that i receive, Dr odudu make every possible in my life contact him now ODUDUSPELL@GMAIL.COM OR CALL +2348051913076 HIS the one that restore my joy back and very power man contact him when ever you are having problem is the right place to get your heart desire granted email :ODUDUSPELL@GMAIL.COM HIS PRIVATE NUMBER +2348051913076
    POLLAR FROM GERMANY

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  11. Hello everybody, my names is Cindy Davis Am from Canada i want to give thanks and honor to Dr.ATILA for the great work he did for me, he brought my lover within 24 hours which i never taught it will ever come through in my life, but this great man Dr. ATILA proved to me that powers can do wonders, i got his contact from a friend in the USA who he helped, this friend of mine told me that this man is great but i felt as hmm are you sure? cause i hardly believe those kind of things,so she told me not to worry that when i contact him, that she is guaranteeing me 100% that my lover will come back that if it does not work that she will be the one to give me back my money, to show her sincerity to me, she gave me her car that if it does not work that and she did not pay me the money that i spent that she i should collect her car and she gave me all the documents, i was so so surprised she was very serious about it so that was how i contacted him and i told him what i want he just told me that everything will be done within 24 hours so with the assurance my friend gave me i was having confident, so in the next 24 hours that he told me i just heard a knock on my door i never knew it was mark, so that was how i opened the door the first thing he did was to go on his knees, he started begging me to forgive him that he is very sorry for everything, i was really surprised and was also happy, so that was how i forgive him and now we are living together happily than ever before, and am using the media to invite my friends on my wedding which will coming up on 30/10/2013, am very happy thanks be to Lucy who gave me his contact and honor be onto Great DR. ATILA who helped a lot, if you need his help or you want to thank him for me you can contact him through atilahealinghome@yahoo.com or cell number +2348169457829

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  12. Hello all,
    Why must we be confused by all this online scammers when we all know that there has never been any other oracle apart from the the great spell casters called lama lama oracle temple, The great oracle and also the i my self called kuq ya that is greatest of all,Kuq ya means GREATEST AMONG ALL THE SPELL CASTERS...This oracle has been in existence for so many years even before i was born i inherited it from my great father..Since we have been existing we have never failed in solving any kind of problem anyone must have been having cos we know the spirits that we serve we never lets us down,We perform various sacrifice to this spirits from time to make our powerful and doings ineffective..This temple is out on the internet to tell of you that is wasting your time and also your hard earned money dealing with all this hungry souls that called there self spell casters and bring cause to themselves by claiming to be what they are not,We advise you all that you should stop it as it is no right to do such a thing,Because those spell caster that called there self different names / temples are scammers,You will do this greatest oracle good by doing that ok..They are scammers and all those testimony there are posted by them also and not the people they have help,They are doing all this to get money to fed there-self and there family members !!! BE WARNED ALL !!.. I have made so many of them online that are spoiling this great temple good work go back to the sea and some blind.I am Dr Kuq Ya the messenger to the great oracle of Nigeria,Indian,Indonesia,Singapore,UK,USA,Uganda,japan,Spain,Germany and Paris..We are know well there as the great temple that has helped them get many of there ANCESTRAL problems solve in recent times..But we are also extending this great offer to those that have any kind of problem,when i mean any kind of problem i mean any problem at all you might be having in this life,Such as getting your love back,you want to be rich, you feel like using charms on someone to get something your like from him or her or getting your scam many back,to mention but a few.. KUQ YA IS HERE FOR YOUR SERVICES AND PLEASE STOP DEALING WITH THOSE SO CALLED SPELL CASTERS THAT HAVE REALLY MESSED UP THIS WORK ONLINE.I HAVE NEVER BEEN ONLINE,BUT THE PRESIDENTS OF THE ABOVE COUNTRIES CALLED ME ON PHONE AND ALSO PERSONALLY HOLD A MEETING AND THEY ASK ME THE MESSENGER TO START ADVERTING AND TELL ALL ABOUT THIS GREATEST ORACLE DURABLE,PERFECT,MARVELOUS,AND GOOD WORKS TO AVOID THIS SCAMMING THAT IS GOING ON ONLINE... I WILL BE ENDING HERE NOW, IF YOU HAVE ANYTHING BOTHERING YOUR MIND AND YOU NEED PERMANENT SOLUTION TO IT WITHOUT ANY SIDE EFFECT OR HARM,KINDLY SEND AN EMAIL TO THE FOLLOWING EMAIL ADDRESS: great.spellcaster@yahoo.com...Thanks and may the spirits guide you to read and understand what i said and also we will be awaiting response from you all that have problems that want it solve at once..
    Thanks for your patronage as you come.

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  13. Thanks to Dr odudu for bring back my lover back in just 24hours i thought i have lost it all but with the help of Dr odudu my lost lover was restored back and will both become husband and wife all with the help of a great man that God has bless with power contact him on his private email for help oduduspell@gmail.com or call +2348051913076. if you really want your problem of relationship to be solve once and for all contact Dr odudu on his email; oduduspell@gmail.com or telephone number +2348051913076
    tracy from AUstralia

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  14. hello every one i have just met with this priest of the ogbefispell@gmail.com and i finally find out that he is really a truthful spell caster and so powerful and he is the most powerful spell caster that i have ever met. i wish i have met her before. and husband have just come back to me and every thing happened just the way he had said it i am so happy that i have met with him and now i have my husband back to my self. if you all that are here have not tried him you just have to do so and get your heart desires fulfilled. stop been doubting i have tested him and i am now a fulfilled woman. Email: ogbefispell@gmail.com

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  15. I am from Canada, I have great joy in me as i am writing this testimony about the great man called Dr.Ekpiku When my lover left me i never taught that i will be able to get him back after all he has put me through, But i am so happy that after the interference of Dr. Trust i was able to get my lover back after 24hours and i can proudly to say, that who ever need help in getting there lover back should contact Dr.Ekpiku on these contact details below Ekpikuspelltemple@live.com for proper understanding of what i have just witness. And i promise that he will help you as he help me.

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  16. “indianspell@hotmail.com has amazed me as I have seen results from everything he has done for me, often quite fast. While I have been to other spellcasters who I believe tried their best; indianspell@hotmail.comsimply is the best, being truly gifted and having written the book on it. In addition, his integrity truly sets him apart in the field as he has told me several times I did not need a spell when he just as easily could have said I did. He is a truly kind and generous person who took time out on a weekend recently to help with a difficult ongoing case for me which brought him no personal gain. His work resulted in an all out miracle with a man I have been in love with for two years. indianspell@hotmail.com rocks!”

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  17. BE CAREFUL HERE NOBODY CAN HELP YOU HERE OR EVEN SUGGEST HOW YOU CAN GET YOUR EX OR LOVE BACK,ANY TESTIMONIES OF MOST SPELL CASTER HERE MUST BE IGNORE.BECAUSE MOST OF THEM ARE SCAM I MEAN REAL SCAM WHICH I WAS A VICTIM AND I GOT RIPPED OF THOUSANDS OF DOLLARS BECAUSE I WAS SO ANXIOUS TO GET MY WIFE BACK AFTER SHE LEFT ME FOR OVER 2 YEARS WITH MY 7 YEARS OLD SON JERRY,I HAVE APPLIED TO 7 DIFFERENT SPELL CASTER HERE AND ALL TO NO AVAIL THEY ALL ASK FOR SAME THING SEND YOUR NAME YOUR EX NAME ADDRESS AND PICTURE PHONE NUMBER ETC WHICH I DID OVER AND OVER AGAIN AND MOST OF THEM WERE FROM WEST AFRICA UNTIL I SAW A POST ABOUT MAMA ANITA SPELL AND I DECIDED TO GAVE HER MY LAST TRAIL.SHE ASK ME FOUR THINGS MY REAL NAME,MY EX AND MY EX MOTHER NAME AND $180 AND SAID MY EX WILL COME BACK IN 24HOURS, I HAVE PAID OVER $3000 ON SPELL CASTING AND COURIER AND NOTHING HAVE WORK FOR ME AFTER 3 DAYS I WAS THINKING ABOUT HOW MUCH I HAVE LOST SO FAR SO I SAID LET ME GIVE HER A TRY SO I CALLED HER AGAIN AND SEND MY REAL NAME,MY EX AND MY EX MOTHER NAME AND THE $180 BECAUSE I SWEAR IT WAS MY LAST TRY SO I WAS WAITING AS SHE TOLD ME TO WAIT TILL NEXT DAY AND I COULD NOT SLEEP THAT NIGHT BECAUSE I REALLY LOVE MY WIFE AND WANT HER BACK AT 9PM THAT DAY I SAW MY WIFE ON LINE ON FACE BOOK AND SHE SAID HI AT FIRST I WAS SHOCK BECAUSE SHE NEVER TALK WITH ME FOR THE PAST A YEAR AND 9 MONTH NOW I DID NOT REPLY AGAIN SHE SAID ARE YOU THERE? I QUICKLY REPLY YES AND SHE SAID CAN WE SEE TOMORROW I SAID YES AND SHE WENT OFF-LINE I WAS CONFUSED I TRY TO CHAT HER AGAIN BUT SHE WAS NO MORE ON LINE I COULD NOT SLEEP THAT NIGHT AS I WAS WONDERING WHAT SHE IS GOING TO SAY, BY 7.AM THE NEXT MORNING SHE GAVE ME A MISS CALL I DECIDED NOT TO CALL BACK AS I WAS STILL ON SHOCK AGAIN SHE CALL AND I PICK SHE SAID CAN WE SEE AFTER WORK TODAY I SAID YES SO SHE END THE CALL IMMEDIATELY I GOT OFF WORK SHE CALL ME AND WE MEET AND NOW WE ARE BACK AGAIN I CALL MAMA ANITA THE NEXT DAY THANKING HER FOR WHAT SHE HAS DONE IN FACT I STILL CALL HER AND THANK HER AS MY LIFE WAS NOT COMPLETE WITHOUT MY WIFE PLEASE BE CAREFUL HERE I HAVE BEEN SCAM THOUSANDS OF DOLLARS IF YOU WANT A TRUE LOVE SPELL THEN CONTACT MAMA ANITA (mama.anitatruelovespell@gmail.com)

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  18. 'After being in relationship with Wilson for seven years,he broke up with me, I did everything possible to bring him back but all was in vain, I wanted him back so much because of the love I have for him, I begged him with everything, I made promises but he refused. I explained my problem to someone online and she suggested that I should contact a spell caster that could help me cast a spell to bring him back but I am the type that don't believed in spell, I had no choice than to try it, I meant a spell caster called Dr Zuma zuk and I email him, and he told me there was no problem that everything will be okay before three days, that my ex will return to me before three days, he cast the spell and surprisingly in the second day, it was around 4pm. My ex called me, I was so surprised, I answered the call and all he said was that he was so sorry for everything that happened, that he wanted me to return to him, that he loves me so much. I was so happy and went to him, that was how we started living together happily again. Since then, I have made promise that anybody I know that have a relationship problem, I would be of help to such person by referring him or her to the only real and powerful spell caster who helped me with my own problem and who is different from all the fake ones out there. Anybody could need the help of the spell caster, his email: spiritualherbalisthealers@gmail.com you can email him if you need his assistance in your relationship or anything. CONTACT HIM NOW FOR SOLUTION TO ALL YOUR PROBLEMS'

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  19. GREAT OGUDUGU!!! You have done it again, you have showed me your powers which i have been hearing from different people, but now am talking out of experience, Dr Ogudugu you are the greatest spell caster that i believed that is existing cause you brought back my lover who left me since 2015 within 24 hours, Sir you are the greatest, thanks for your great work in my life, and i will live to remember you cause you put a smile on my face by making my dream to come to past, thank you once again sir. My friends out there who needs help, i will advice you contact Dr Ogudugu for help cause he is a great man, here is Dr Ogudugu's email: greatogudugu@gmail.com.

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  20. I made a promise to tell my testimony all over the globe once my man come back to me and my husband came just as Great Mother told me when she helped me. I made the right choice to have contacted Great Mother the great spell caster who is capable of helping you solve your problems. My man left me to suffer and i never believed that he will come back to me again but when i contacted Great Mother she assured me that my man will come again. She gave me some list of items to buy but i could not get them in my country and so i sent her the money and she bought the items and prepared the perfect love spell. My husband ran back to me in 3 days time begging for forgiveness THIS IS SO REAL AND GENUINE. NO SCAMS. I was so surprise that the spell worked just as she told me. This is so amazing and i want you to believe because Great Mother is so real and i urge you contact her now on her email so that she can also help you the way she helped me. Her email is Greatmotherofsolutiontemple@yahoo.com and you can also contact her with her phone number on whats app +2348078359876 you can also check and contact her on
    Greatmotherofpowers.blogspot.com
    Greatmotherofsolution.blogspot.com

    I made a promise to tell my testimony all over the globe once my man come back to me and my husband came just as Great Mother told me when she helped me. I made the right choice to have contacted Great Mother the great spell caster who is capable of helping you solve your problems. My man left me to suffer and i never believed that he will come back to me again but when i contacted Great Mother she assured me that my man will come again. She gave me some list of items to buy but i could not get them in my country and so i sent her the money and she bought the items and prepared the perfect love spell. My husband ran back to me in 3 days time begging for forgiveness THIS IS SO REAL AND GENUINE. NO SCAMS. I was so surprise that the spell worked just as she told me. This is so amazing and i want you to believe because Great Mother is so real and i urge you contact her now on her email so that she can also help you the way she helped me. Her email is Greatmotherofsolutiontemple@yahoo.com and you can also contact her with her phone number on whats app +2348078359876 you can also check and contact her on
    Greatmotherofpowers.blogspot.com
    Greatmotherofsolution.blogspot.com

    ReplyDelete